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2020 HIV Long-Term Survivors Awareness Day (June 5)

HIV Long-Term Survivors Awareness Day (HLTSAD) is commemorated on June 5 – the anniversary of the day in 1981 when the U.S. Centers for Disease Control and Prevention (CDC) reported the first cases among gay men of a mysterious illness that would later become known as AIDS. 

According to its organizers, HLTSAD “focuses on the present-day needs, issues, strengths, and resiliencies of people longest with HIV/AIDS.” The theme for 2020 HLTSAD is ‘Not Our First Pandemic’ – which the awareness day organizers see as “an invitation to survivors to share insights gleaned from surviving the AIDS pandemic with a world gripped by COVID-19 . . . We [long-term survivors] have valuable lessons to teach our community and the world about living and survival. It’s time to embrace our role as elders, teachers, and leaders.”

To help commemorate the HLTSAD, we have compiled a brief annotated list of online resources focusing on HIV long-term survivors.

HIV Long-Term Survivors Awareness Day website – This site includes background information about HLTSAD, long-term survivors of HIV/AIDS, and events to mark the day.

HIV Long-Term Survivors Day #HLTSAD – HIV.gov's resource page for HLTSAD, which includes a variety of materials to help organizations raise awareness about HIV among long-term survivors. It includes a link to a recent blog post discussing HLTSAD’s ‘Not Our First Pandemic’ theme for 2020.

LetsKickASS – AIDS Survivor Syndrome – This grassroots organization is devoted to improving the lives of survivors and helps organize HLTSAD. 

The Reunion Project (TRP) – According to its founders, TRP is a “national alliance of long-term survivors of HIV, collaborating with local and national HIV advocates, providers, and researchers. Together, we convene and connect individuals and communities, sharing our experiences of survival and loss while honoring our past, and developing successful strategies for living and supporting one another—today and into the future.”

Long-Term Survivors of HIV – This web page from The Well Project includes background information about HIV long-term survivors, AIDS survivor syndrome, and the physical health and quality of life concerns of this community.

Managing Long-Term HIV Survivors – This section of TheBodyPro website includes news, features, and opinion pieces focusing on HIV long-term survivors and on older persons (aged 50 or older) living with HIV.

#Long-Term Survivors – This section of the Poz website is a compilation of news and opinion pieces that are either directly about, or considered relevant for, long-term survivors of HIV/AIDS.

Pre-HAART Long-Term Survivors Forum – This Poz question-and-answer forum is for persons who have been living with HIV since before 1996 – the year when highly active antiretroviral therapy (HAART) first became widely available.