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HIV/AIDS in New England

Education Packet

HIV/AIDS in New England – This is a compilation of several recent fact sheets and other resources about HIV in the New England region. You may wish to customize it to meet the needs or interests of particular groups, such as event participants, providers, patients, clients, or the general public. So please feel free to distribute all or part of this packet as either a printout or PDF.

Regional and State Data

HIV in the United States by Region (CDC) – This resource provides data on HIV diagnoses, prevalence, and deaths in the following five regions: Northeast, Midwest, South, West, and U.S. Dependent Areas.  The Northeast region includes the six New England states, plus New Jersey, New York, and Pennsylvania. However, some maps included in this resource show state-by-state information. CDC has also summarized highlights of this regional information in a fact sheet.

Diagnoses of HIV Infection in the United States and Dependent Areas, 2019 (CDC) – This 123-page surveillance report includes detailed information about new HIV diagnoses, prevalence, and deaths in the U.S., including breakdowns by geographic region, gender, race/ethnicity, transmission category, and age. The report includes a series of Special Focus Profiles highlighting six populations of particular interest to HIV prevention programs in state and local health departments: transgender persons; gay, bisexual, and other men who have sex with men; persons who inject drugs; women; adolescents and young adults; and children under 13 years old.

Estimated HIV Incidence and Prevalence in the United States, 2015-2019 (CDC) – This report provides estimates of the number of new HIV infections and the total number of persons living with HIV during each year from 2015 through 2019. It begins with a commentary section that summarizes highlights of the report, followed by 13 tables that present data on HIV incidence and prevalence among adults and adolescents, with breakdowns by sex at birth, age, race/ethnicity, transmission category, and region of residence, including the Northeast. An appendix focuses on the estimated incidence and prevalence of HIV infection among adults and adolescents living in Ending the HIV Epidemic (EHE) Phase 1 jurisdictions.

Monitoring Selected National HIV Prevention and Care Objectives by Using HIV Surveillance Data United States and 6 Dependent Areas, 2019 (CDC) – This report presents the results of focused analyses of U.S. HIV surveillance data to measure progress toward ending the HIV epidemic. It includes information on the stage of HIV disease at time of diagnosis, linkage to HIV medical care, viral suppression, prevalence-based HIV care continuum, HIV deaths and survival, use of pre-exposure prophylaxis (PrEP), and perinatal HIV infections. The report also includes a series of Special Focus Profiles highlighting six populations of particular interest to HIV prevention programs in state and local health departments: transgender persons; gay, bisexual, and other men who have sex with men; persons who inject drugs; women; young persons; and persons with perinatally acquired HIV infection. For some measures, data are broken down by area of residence, gender, age, race/ethnicity, and transmission category. 

Estimated HIV Incidence and Prevalence in the United States, 2010-2019 (CDC) – This slide set summarizes trends in HIV incidence during the 2010s, with breakdowns by region, age, sex, race/ethnicity, and transmission category. Data for 2019 is also provided on knowledge of HIV status, as well as HIV prevalence in the 50 states, District of Columbia, and Puerto Rico.

HIV Infection, Stage 3 (AIDS), 2019 (CDC) – This slide set summarizes trends in AIDS diagnoses and deaths from 1985 to 2019, with breakdowns by region, age, sex, race/ethnicity, and transmission category. Data on cumulative AIDS diagnoses and deaths through 2019, and AIDS data for Metropolitan Statistical Areas are also provided.

National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention (NCHHSTP) AtlasPlus (CDC) – This online tool gives users the ability to create customized tables, maps, and charts using more than 15 years of CDC surveillance data on HIV, viral hepatitis, sexually transmitted diseases (STDs), and tuberculosis. AtlasPlus also provides data on indicators of social determinants of health, thereby allowing users to view social and economic data together with surveillance data for each disease. Users can select the type of data they want to see and how they want to see them, whether in the form of maps, charts, or tables. In the "maps" option, data are presented in the form of maps of U.S. states and territories for HIV diagnoses, prevalence, deaths, the HIV care continuum, pre-exposure prophylaxis (PrEP), and other selected variables.

HIV Surveillance in Urban and Nonurban Areas 2018 (Preliminary) (CDC) – This slide set presents regional variations of diagnoses of HIV and AIDS among adults and adolescents in the U.S.

Diagnoses of HIV Infection Among Adults and Adolescents in Metropolitan Statistical Areas: United States and Puerto Rico, 2017 (CDC) – This slide set presents HIV surveillance data for the U.S. and Puerto Rico among adults and adolescents in metropolitan statistical areas. Also available as PowerPoint slides.

Ryan White HIV/AIDS Program (RWHAP) State Profiles (HRSA) – Visitors to this web page may use a pull-down menu to access state-specific data about RWHAP clients including breakdowns by age, gender, race/ethnicity, income, health care coverage, and HIV status, as well as risk/transmission categories for female, male, and transgender clients. The page also has an option for state-to-state comparisons of these client characteristics.

HIV Legal Landscape (CDC) – CDC’s Division of HIV/AIDS Prevention systematically collects and assesses information about HIV statutes and regulatory frameworks to help determine whether these act as barriers or facilitators to effective HIV prevention. CDC summarizes in text, tables, and maps state-specific data on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDSVu Regional Data: Northeast – AIDSVu is an interactive online mapping tool that visualizes the impact of the HIV epidemic on communities across the U.S.  Please note that, in addition to the six New England states, AIDSVu’s Northeast region includes the states of Delaware, New Jersey, New York, and Pennsylvania. State-by-state data and limited county data for each New England state are available at the following links: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. 
 

Connecticut Resources

Connecticut Department of Public Health HIV Surveillance Program – This is the home page for the state’s HIV/AIDS data.  It includes a “Quick Stats” section with information on new HIV diagnoses and HIV prevalence in the state for the most recent available year.

Epidemiological Profile of HIV: Connecticut – This is Connecticut’s most recent available detailed profile of HIV in the state, with information on HIV testing, new HIV diagnoses, prevalence, deaths, continuum of care, behavioral risks, STDs, and hepatitis C, among other topics. Data breakdowns are also provided by city or town, race/ethnicity, gender, age, and transmission category.

HIV in Connecticut – This fact sheet summarizes recent HIV data for the state, including new HIV diagnoses, HIV prevalence, and deaths, with some breakdowns by transmission category, race/ethnicity, age, and gender.

Connecticut HIV Statistics – This page has links to many statewide data tables and reports summarizing: trends in HIV and AIDS diagnoses; affected population groups by gender, race/ethnicity, transmission category, and age; HIV prevalence; the continuum of care; and other topics.

Connecticut State Laws that Address High-Impact HIV Prevention Efforts (CDC) – This compilation with hyperlinks includes Connecticut laws related to HIV/STD criminalization, minors’ autonomous consent to HIV and/or STD services, perinatal HIV testing, HIV testing in the general population, and laboratory reporting laws. See also CDC’s pages focusing specifically on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDS Drug Assistance Program (ADAP) for Connecticut: This page includes information about the state ADAP’s eligibility criteria, application instructions, formulary, hepatitis C drug therapy, and links for additional information.

AIDSVu Local Data: Connecticut – This graphically rich, interactive resource is from Emory University’s Rollins School of Public Health. It includes extensive state and county-level data, with demographic breakdowns of HIV prevalence, new HIV diagnoses, late HIV diagnoses, and HIV mortality. Information is also provided on PrEP use, racial/ethnic disparities in HIV prevalence, HIV testing, the continuum of care, social determinants of health, and STDs.

AIDSVu data are also available for the following metropolitan statistical areas (MSAs) in Connecticut: the Hartford MSA; the Bridgeport-Stamford-Norwalk MSA, and the New Haven-Milford MSA.
 

Maine Resources

Maine Department of Health and Human Services Infectious Disease Prevention Program – This is the home page for Maine’s HIV, STD, and Viral Hepatitis Program. It includes links to HIV and STD surveillance reports, frequently asked questions about home HIV testing and PrEP, and guidance and recommendations on HIV, hepatitis C, and STD testing.

Maine HIV Surveillance Report: 2019 – This fact sheet has information on trends in HIV diagnoses; new diagnoses by gender, race/ethnicity, and transmission category; HIV prevalence; and selected characteristics of people with HIV in Maine.

Maine HIV Data – This page has links to selected annual and monthly HIV surveillance data.

Maine State Laws that Address High-Impact HIV Prevention Efforts (CDC) – This compilation with hyperlinks includes Maine laws related to HIV/STD criminalization, minors’ autonomous consent to HIV and/or STD services, perinatal HIV testing, HIV testing in the general population, and laboratory reporting laws. See also CDC’s pages focusing specifically on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDS Drug Assistance Program (ADAP) for Maine: This page includes information about the state ADAP’s eligibility criteria, application instructions, formulary, hepatitis C drug therapy, and links for additional information.

AIDSVu Local Data: Maine – This resource includes extensive state and county-level data, with demographic breakdowns of HIV prevalence, new HIV diagnoses, late HIV diagnoses, and HIV mortality. Information is also provided on PrEP use, racial/ethnic disparities in HIV prevalence, HIV testing, the continuum of care, social determinants of health, and STDs.
 

Massachusetts Resources

Massachusetts Department of Public Health (MA DPH) HIV Information – The MA DPH Bureau of Infectious Disease and Laboratory Sciences has compiled extensive resources on HIV in Massachusetts.  Information is grouped into six main categories:

Massachusetts HIV/AIDS Epidemiologic Profiles – This page has links to many profiles, slide sets, and fact sheets for the state as a whole, specific population groups, and for particular Massachusetts cities and towns, counties, and Health Service Regions. For your convenience, we have linked to several of these resources below:

HIV Prevention Profile: Massachusetts (CDC) – This infographic summarizes recent data for Massachusetts on the incidence and prevalence of HIV, testing, the HIV care continuum, as well as the national Ending the HIV Epidemic initiative.

Massachusetts State Laws that Address High-Impact HIV Prevention Efforts (CDC) – This compilation with hyperlinks includes Massachusetts laws related to HIV/STD criminalization, minors’ autonomous consent to HIV and/or STD services, perinatal HIV testing, HIV testing in the general population, and laboratory reporting laws. See also CDC’s pages focusing specifically on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDSVu Local Data: Massachusetts – This resource includes extensive state and county-level data, with demographic breakdowns of HIV prevalence, new HIV diagnoses, late HIV diagnoses, and HIV mortality. Information is also provided on: PrEP use, racial/ethnic disparities in HIV prevalence, HIV testing, the continuum of care, social determinants of health, and STDs. AIDSVu data are also available for Boston.

AIDS Drug Assistance Program (ADAP) for Massachusetts: This page includes information about the state ADAP’s eligibility criteria, application instructions, formulary, hepatitis C drug therapy, and links for additional information. Please note that the Massachusetts ADAP also has a PrEP component (PrEPDAP).
 

New Hampshire Resources

New Hampshire Department of Health and Human Services – Most state-specific resources on HIV, including epidemiologic reports, are found on the agency’s STD/HIV/Viral Hepatitis Publications page.  

New Hampshire STD/HIV Surveillance Program: 5-Year Data Summary Report, 2015-2019 – This report includes HIV and AIDS case data for the years 2015 through 2019, with breakdowns by gender, age, race/ethnicity, and county or city. Similar data for chlamydia, gonorrhea, and syphilis are also included.

New Hampshire Epidemiologic Profile for HIV/AIDS Prevention and Care Planning 2013 – This document is a comprehensive HIV needs assessment for the state.

New Hampshire State Laws that Address High-Impact HIV Prevention Efforts (CDC) – This compilation with hyperlinks includes New Hampshire laws related to HIV/STD criminalization, minors’ autonomous consent to HIV and/or STD services, perinatal HIV testing, HIV testing in the general population, and laboratory reporting laws. See also CDC’s pages focusing specifically on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDS Drug Assistance Program (ADAP) for New Hampshire: This page includes information about the state ADAP’s eligibility criteria, application instructions, formulary, hepatitis C drug therapy, and contact information.

AIDSVu Local Data: New Hampshire – This resource includes extensive state and county-level data, with demographic breakdowns of HIV prevalence, new HIV diagnoses, late HIV diagnoses, and HIV mortality. Information is also provided on PrEP use, racial/ethnic disparities in HIV prevalence, HIV testing, the continuum of care, social determinants of health, and STDs.

Rhode Island Resources

Rhode Island Department of Health: HIV Progress – This page includes information about newly diagnosed HIV cases, HIV prevalence, and deaths among people with HIV in Rhode Island.

Rhode Island Integrated Prevention & Care Comprehensive and Statewide Coordinated Statement of Need Plan: CY 2017-2021 – This document provides a detailed summary of HIV/AIDS in Rhode Island, together with a needs assessment for the state.

2018 Rhode Island HIV Epidemiologic Profile with Surrogate Data – This is a detailed HIV/AIDS surveillance report for the state, with summary data and breakdowns by gender, transmission category, race/ethnicity, and deaths. Information is also provided on the HIV care continuum, as well as on specific population groups including: persons unaware of their HIV status; babies born to women with HIV; gay, bisexual, and other men who have sex with men; African American and Hispanic women; and youth and young adults. Data are also included on chlamydia, gonorrhea, syphilis, tuberculosis, and hepatitis C.

Rhode Island HIV, Sexually Transmitted Diseases, Viral Hepatitis, and Tuberculosis Surveillance Report: 2019 – This report provides and extensive overview of HIV and other infectious diseases in Rhode Island. It also discusses the geographical distribution of HIV and STDs in the state, and addresses disease risk and prevalence in different racial/ethnic groups, women, gay and bisexual men, and youth.

Rhode Island State Laws that Address High-Impact HIV Prevention Efforts (CDC) – This compilation with hyperlinks includes Rhode Island’s laws related to HIV/STD criminalization, minors’ autonomous consent to HIV and/or STD services, perinatal HIV testing, HIV testing in the general population, and laboratory reporting laws. See also CDC’s pages focusing specifically on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDS Drug Assistance Program (ADAP) for Rhode Island: This page includes information about the state ADAP’s eligibility criteria, application instructions, formulary, hepatitis C drug therapy, and contact information.

AIDSVu Local Data: Rhode Island – This resource includes extensive state and county-level data, with demographic breakdowns of HIV prevalence, new HIV diagnoses, late HIV diagnoses, and HIV mortality. Information is also provided on PrEP use, racial/ethnic disparities in HIV prevalence, HIV testing, the continuum of care, social determinants of health, and STDs.
 

Vermont Resources

Vermont Department of Health: HIV – This page includes general information about HIV, as well as a link to the agency’s HIV surveillance page.

HIV Surveillance – This page describes HIV surveillance in Vermont and has links to national, global, and state data.

State of Vermont 2016 HIV Integrated Epidemiologic Profile – This report, Vermont’s most recent available epidemiologic profile, describes the state’s epidemiologic experience of HIV/AIDS, focusing on the scope of the HIV burden in Vermont and the risk indicators for HIV infection in the state.

2017 Vermont HIV Annual Report – This is the latest annual HIV epidemiologic summary for Vermont currently available. It includes information about a 2017 transmission cluster investigation, the history of HIV in Vermont, newly reported HIV cases in Vermont, HIV prevalence and demography, linkage to care and viral suppression, and additional resources.

Vermont State Laws that Address High-Impact HIV Prevention Efforts (CDC) – This compilation with hyperlinks includes Vermont’s laws related to HIV/STD criminalization, minors’ autonomous consent to HIV and/or STD services, perinatal HIV testing, HIV testing in the general population, and laboratory reporting laws. See also CDC’s pages focusing specifically on the following: state HIV laws, HIV and STD criminal laws, minors consent laws, laboratory reporting laws, and perinatal HIV testing laws.

AIDS Drug Assistance Program (ADAP) for Vermont: This page includes information about the state ADAP’s eligibility criteria, application instructions, formulary, hepatitis C drug therapy, and contact information.

AIDSVu Local Data: Vermont – This resource includes extensive state and county-level data, with demographic breakdowns of HIV prevalence, new HIV diagnoses, late HIV diagnoses, and HIV mortality. Information is also provided on PrEP use, racial/ethnic disparities in HIV prevalence, HIV testing, the continuum of care, social determinants of health, and STDs.

 

The contents listed on this page are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, the New England AIDS Education and Training Center.